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Ali, (02)
Good point on data nearly being impossible to "anonymize." (03)
On information being important only to the patient and their
physician, what I meant was in terms of traditional notions of
privacy, i.e., some friend or neighbor knows about your medical
conditions. (04)
In the US, my insurance company already sells my medical data to a
variety of folks. Only way to account for changing junk mail that
addresses recent prescriptions. (05)
Is there any disagreement that the average citizen lives in a goldfish
bowl? If not, all I am saying to government and industry is: "..come
on in, the water's fine...." (06)
Hope you are having a great day! (07)
Patrick (08)
On 01/21/2014 11:04 AM, Ali H wrote:
> Hi John,
>
> On Tue, Jan 21, 2014 at 10:53 AM, John McClure
> <jmcclure@xxxxxxxxxxxxxx <mailto:jmcclure@xxxxxxxxxxxxxx>> wrote:
>
> Hi Patrick - redacting patient PII (personally identifiable info)
> I'd think should be adequate safeguard of medical privacy while
> providing the info
>
>
> In practice this is actually, virtually impossible. As new
> research increasingly demonstrates, "anonymized data" is an
> illusion [1]. For one thing, you can't necessarily control how that
> info will be combined with other datasets, and usually it is
> surprisingly(?) easy to deanonymize data with some simple
> assumptions about the domain. And whoever asserted that patient
> info is only of interest to the patient themselves is not quite
> right.... [2]
>
> [1]
>
>http://arstechnica.com/tech-policy/2009/09/your-secrets-live-online-in-databases-of-ruin/
>
>
[2]
http://www.theguardian.com/society/2014/jan/19/nhs-patient-data-available-companies-buy
>
> -- . (•`'·.¸(`'·.¸(•)¸.·'´)¸.·'´•) .,.,
>
>
>
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> (09)
- --
Patrick Durusau
patrick@xxxxxxxxxxx
Technical Advisory Board, OASIS (TAB)
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