Re: [ontolog-forum] Ontological issues relative to privacy.

[Ali H <asaegyn@xxxxxxxxx>]

Hi John,

On Tue, Jan 21, 2014 at 10:53 AM, John McClure <jmcclure@xxxxxxxxxxxxxx> wrote:

Hi Patrick - redacting patient PII (personally identifiable info) I'd
think should be adequate safeguard of medical privacy while providing
the info

In practice this is actually, virtually impossible. As new research increasingly demonstrates, "anonymized data" is an illusion [1]. For one thing, you can't necessarily control how that info will be combined with other datasets, and usually it is surprisingly(?) easy to deanonymize data with some simple assumptions about the domain. And whoever asserted that patient info is only of interest to the patient themselves is not quite right.... [2]

[1] http://arstechnica.com/tech-policy/2009/09/your-secrets-live-online-in-databases-of-ruin/
[2] http://www.theguardian.com/society/2014/jan/19/nhs-patient-data-available-companies-buy

--

.

(•`'·.¸(`'·.¸(•)¸.·'´)¸.·'´•) .,.,

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